Watch your step as you enter the ride. Make sure your seatbelt is tight and the shoulder restraints are locked in place. Keep all body parts inside the car, and enjoy the ride. A rollercoaster is one of the most accurate descriptions of a life with Parkinson’s. One minute you are chugging along up
the hill and then the bottom drops out and you are in a freefall. This up and
down continues until the ride is over, and often, the same can be said for
life.
In so many ways, and in so many aspects of life, this
constant up and down is present. One day you’re are humming along, and things
are going well up on the mountain, the next day the world is turned upside down,
and looking around, you have no idea how you got in the valley. With Parkinson’s,
you never quite know what a day will hold. One day your medicines are working great,
and your symptoms are very mild. The next day you get up and you can hardly
move, and you really have done nothing different.
These ups and downs are not just physical, many times they
are emotional as well, and often this is tied to how you are doing physically. There
are days when I am upbeat and optimistic, and there are days when I am
discouraged and I just cannot face it anymore. Days when I am happy and joking,
and days when I am in tears and cannot talk about it.
Many times as Christians, we think we should always be up, always
be joyful, and always be optimistic about the future – that we should always be
on the mountain top. But real-life is not like that. In real life there are serious
valleys, and there are days of great discouragement. There are days when we are not
okay with our current situation, and days that are full of tears.
With Parkinson’s, the days are very unpredictable. You will
have good days and you will have bad days – and many times from minute to
minute, you will not know which day you will get. On those down days, it is
hard to hope, and very hard to see the light. During those valleys we can beat
ourselves up for how we are handling things, causing even more discouragement. In
reality, we need to realize that the downtimes are part of life.
We will not always be on the top of the mountain. We will
experience valleys. We will have days that are hard, and these days will cause
discouragement. Yesterday I was laughing and joking, even making jokes about my
Parkinson’s. Today, I woke up in pain, having only slept three hours, not feeling
good at all, and was on the verge of tears many times, and that was okay. It
was okay that I was in a valley today.
Too often, when we are in the valley, we try to hide it, and
pretend that we are okay when we are not. By doing that, we do not help ourselves,
and we rob those around us of the opportunity to help and encourage us. For
when we are in the valley, we need our community more than ever. God did not
design us to walk always on the mountain. “Yea though I walk through the valley…”
– it is right there in Psalm 23 – we will walk through valleys; we will have
tough days.
But valleys and tough days are not without hope. As Tauren
Wells reminds us, He is the God of the Hills and the Valleys. The rest of that
verse in Psalms 23 says, “…I will fear no evil for thou art with me…”. On this
rollercoaster ride of life, He is with us for every up and down.
Next time you find yourself in a tough day, remember He and
your community are with you. Instead of hiding it from them, let them see and
welcome their encouragement and help. We all have hard days, and we all need
help and encouragement. It is not weakness to accept these things – sometimes it
is the strongest and most courageous thing you can do.
Enjoy this song:
Thank you Charles for being so real about it all. Your disease and life in general. Taking off the masks that people want to see instead of the real me is refreshing otherwise if I don't take it off I feel like I'm suffocating! GOD bless!
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