So many things I cannot do. So many ways my body is failing.
So many extra things my wife, my children, and others have to pick up and do
because of my illness. So many decisions that have to be considered and made
because of me. I know my wife and children love me, but am I enough?
Every human desires love and relationship. We all need a
connection to others, because God did not design us to walk through this life
alone and in isolation. We were designed for relationship and community. That
community can take many forms. Sometimes our community is our spouse and
children; sometimes that community is family and friends; sometimes that
community is work or church. There are so many possible communities out there,
and as individuals, we are designed to be part of something.
Chronic illness can be and often is a barrier to this
community. It makes relationships much more challenging, and brings doubt,
confusion, misunderstanding, and pain. It hampers a person’s ability to connect
with those around them, and isolates them in dozens of different ways.
My Parkinson’s diagnosis was no different. It affected every
avenue of the communities surrounding me. Many times I just would not have the
energy to spend with friends. Sundays would often be a struggle, isolating me
from my church family. At home, the pain, exhaustion, and doubt would isolate
me from my most important community – my family. This disease affected every
aspect of our relationship and it caused distance, uncertainty, doubt, and
pain.
I would often wonder, especially in relation to my family –
my wife and my children – would I be enough? As my body failed me, and I could
no longer do the things a husband and father should be able to do, would I
still be enough? I had seen so many families break up or be destroyed by things
like this, and when I chased that rabbit of fear down the rabbit hole of the
future, I was left with the question, would I or am I enough for my family?
In asking that question, I realize two things. First, I was
not giving them the credit they deserved. Second, I was tying their love and
relationship to me with one thing – what I could do. I was starting from the
false assumption that the only reason they loved and cared for me was simply
because of what I could do, what I could offer, basically, what I brought to
the table.
When I evaluated my contribution to these relationships
based solely on this, then no, I was not enough. I had to realize though that
our relationship was not all about what I could do. Our relationship was much
more than that. This was especially hard for me to realize in my relationship
with my wife. I knew she loved me, and I knew she was always there for me, but
as my body failed (and would fail even more in the future), fear would grip my
heart and I would ask this question, “Am I enough?”
One night in particular, we had this hard discussion. It had
been a hard week and we were having to make decisions that should not have to
be made as a 44 year old, and I was hurting, I was struggling, and I was
battling doubt in so many things. I was frustrated with my situation in life
and felt like a failure in so many ways. I felt like, and really believed, that
I could not give her what she needed, and through that prism, the future looked
terrifying.
I looked at her and was heartbroken to think of what she was
going through with me, and what she would have to go through in the future. I
hated the pain my illness was causing; I hated the burden she would have to
bear; I hated the struggle it added to our relationship, and fear and doubt
gripped my heart. I began to listen to the lie in my head that I was not
enough. I began to look at so many others and wondered if we would survive – if
the pain and struggle would one day become too much.
No matter what I did, I could not shake this feeling. She
could tell something was wrong, but for weeks I would not say. One day, she
finally cornered me and got me to talk, and with tears in my eyes, I simply
asked. “Am I enough? I feel like such a burden. I have been given a life
sentence, and in many ways so have you. I can’t do the things a husband should
do, and it is only going to get worse, and I really wonder if I am enough?” She
looked at me and very sweetly said, “Well that’s a stupid question (If you know
my wife, you can probably see her saying that). Stop asking yourself that, yes
of course you are. Even if I had known all of this, I would still make the same
decision.”
All these things I was focused on, all these things that
were bothering me, all of the shortfalls I had, they were not important to her.
She loved me, and she was with me, no matter the course this journey took.
While encouraging to hear, I realized that I had to believe it as well, or
nothing would change. I had to accept where things were and trust, walking
forward in faith. Yes, I might not be able to do so many things, but that did
not mean I was not enough, it simply meant things were a little different in my
community and in our relationship. I needed to “give myself a break”, realize some things maybe
were not as important as I thought, and focus on the love and care I was
receiving, not what was missing.
Are there still days that are hard and discouraging – yes.
Are there days when I struggle with this question still – of course. Are there
days when I still beat myself up for what I cannot be to those around me –
unfortunately there are, but those feelings are not from them, they are from
within. I must continue to battle these lies with the truth that I am loved and
that I am enough. Regardless of what I can or cannot do, my worth and my
community are not based on that. It is based on a foundation of love, and that
makes it, and me, enough.
Great read.
ReplyDelete